Sunday, March 31, 2019

CBD vapors: Our new frontier

Last week, we brought Chaya back to the epileptologist who first examined her in September 2018 ["Making it a round dozen"].

During that first visit, she had spent a solid hour patiently recording Chaya's history and recommending several new steps we should take. But once home, we hit snags that prevented us from proceeding. The primary one was our inability to contact her staff. They never returned calls or emails and we needed to coordinate everything with them. 
 
I was prepared to just forget about this epileptologist notwithstanding her superb credentials and top grade recommendations. But the Hubby preferred to persevere. 

So, last week we expended a second round of time, energy and money to shlep back to her with Chaya. As it turned out, the latter proved entirely unnecessary: the doctor didn't so much as look at Chaya, let alone touch or medically examine her. 

One of her concerns back in September was Chaya's thinness. This time she asked us whether she had gained weight since our last visit. But she didn't trouble to weigh her on either occasion. Chaya might as well have been invisible and our efforts to bring her to the office were clearly wasted. 

I was puzzled and annoyed. What's the consensus out there? Am I being unreasonable?

This time around, her assistant did contact us a few days after the appointment. She is instructing us on how to switch Cannabis CBD suppliers. This is a complicated process involving reams of paperwork required by the Ministry of Health. 

The switch is necessary in order to procure CBD in vapor form. which the epileptologist believes is absorbed more thoroughly than the oil Chaya currently receives. 

To start with, we will divide dose between the two forms.

We are pursuing this option over the one that the epileptologist urged on us most enthusiastically, namely: surgery. She is keen to have Chaya's twenty year old, inactive Vagal Nerve Stimulator (VNS) removed and replaced with an updated, more sophisticated version. 

We had this urged on us three years ago by another neurologist: the one who destroyed Chaya's liver with Valproic Acid and then washed her hands of us. So, I'm sure you'll understand why it isn't an option for which I harbor any warm sentiments.

At that time, we got as far as meeting the surgeon himself. He informed us that the surgery would be "complicated" but doable. He too was eager, though he warned us that a pre-requisite would be Chaya's gaining some weight.
But before Chaya could oblige us with some weight, liver failure struck and the neurologist who had been touting the VNS surgery, as I mentioned, fled the scene. (After alleging that the liver failure was more likely caused by the CBD than by the Valproic Acid.)

Fast forward to last week's visit: I've had a couple of years to mull the surgical option and am far less enamored with it than I was then. Chaya has been through the liver ordeal and several severe urinary tract infections in the interim.
So this time I pressed hard on the brakes. "Thanks, but no thanks." I told the epileptologist. "Chaya will try the CBD vapors before we subject her to any complicated surgery." Or something to that effect.
Of course, the doctor tried to convince me of its "uncomplicatedness". But I wasn't buying it this time. 

So here's hoping those vapors bring Chaya's ravaged brain some respite from the two decades of daily seizures she has endured.

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