Wednesday, January 13, 2021

Update: Epilepsy medication

We are nearing the end of the 6 mg phase of Fycompa (generic name: perampanel) and approaching the therapeutic dose of 8 mg.

We still haven't located anyone else taking this drug which received its first FDA approval in 2012, for patients over 12 years old. And in 2018, was approved by the FDA for anyone over the age of 4. 

Some of the possible side effects are irrelevant to Haya.

For instance slurred speech; we're actually hoping it does give her some slurred speech!

And deterioration in gait: any sort of gait would be great!

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